PASS IT ON!


So we’ve just gone through that Christmas time again, when all is well in the World and Santa brings joy and pressies to one and all. At this time of year we would be forgiven for not realising that not everyone will share the glad tidings of joy and abundance of happiness that overflows from the cup of ‘Seasons Greetings’.

There are many reasons for not sharing in this joyous time; it could be religious: Islam is the fastest growing religion in the World while, according the Christian Orthodox calendar, we are way out! It could be that you have experienced the loss of a loved one at this time of year so Christmas becomes a time of reflection on a life that’s lost and for those left behind; or it could be that you are homeless, not knowing where your next hot meal is going to come from or if you’ll find a decent, dry pitch for the night. But, I think, the killer is loneliness.

Loneliness accounts for more deaths at this time of year than heart failure, alcoholism and substance abuse; all of which can be attributed to the consequence of loneliness. My mother, like so many other mothers, feels lonely since the death of my father and at this time of year her loneliness becomes much more acute; it’s lonely when everyone else is having fun and you miss, with every sinew of your being, your soul-mate and life-long partner. For the single person, living away from family and friends, ‘seasons greetings’ can feel hollow and something of a ‘sham’, Yet, to me, the worse kind of loneliness is the loneliness felt while you are in a loving relationship with family and friends around you.

Like everyone else I have felt lonely at various points in my life… some may say “it’s character building”! I’ve been on my own at this time of year, but, before and after the 25th, always managed to party well. Yet, as a result of 17 years of constant pain, I have had my greatest ‘moments’ of loneliness while being married with children. But wait! That statement should not reflect upon my family in a negative way, it’s not them… it’s me!

Constant pain causes depression, huge revelation that! No! Of course it’s not! Anyone with a few, free grey cells knows the consequences of chronic pain; that tooth abscess x365days! Constant, chronic pain becomes all-embracing, after a while it starts to rule your life. You can fight it for as long as you can, but, at some stage, it’s going to beat you! It’s going to beat you so bad that you withdraw into the shell that was once you.

In my case, the early stages of depression manifested as sporadic feelings of helplessness and loneliness. I recall on a particular occasion opening-up to my wife and telling her I felt lonely, she found it totally incomprehensible that I could have feelings of loneliness while being married with 4 children. My wife felt it was a reflection upon her and our family, which, of course, it wasn’t, but it was very difficult to explain, exactly, what I was going through. Over the years, I have found it easier to explain and my wife now recognises many of the ‘signs’, much more than I do in fact!

One of the issues people have regarding loneliness and depression is that ‘it may rub-off on others’, which of course is bollocks! in the same way that a scowl won’t turn the milk sour!

People are social animals; we need each other, whether its to talk to or to kick us up the butt every now and then! We need to feel the warmth of another and to know there is someone there when we are ‘ready’ or ‘able’ to look for that hand-up, that hand of friendship.

So, please, as we go into a new year, take a look about you. That person stood at the bar or sat on their own; whether it’s a he or a she; old or young. Hold out that hand of friendship, say hi! You don’t need to become life-long buddies, but, just by acknowledging the person you will change their day; no big talks, no life stories a simple Hi! will do.

Loneliness is not contagious but laughter is most certainly infectious, so pass it on!

JSB

Warming the cockles of my heart


Sunny day in Leicester, great to feel the warmth easing the aches and pains, ready for them to kick the crap out of me tomorrow, not doubt.

People suffering with cronic-pain will tell you just how so very frustrating life can be. It’s difficult for a non-sufferer to understand, how this daily trial that we call life, is for those in the know. You see, you cant see pain! Oh! Yes! You can see the ‘effects’ of pain written on the face of every sufferer. It may be that you don’t see someone for months, well, that’s usually because they been having a crap time of it lately.

I sometimes wonder whether its just sufferers and physicists that understand. I say ‘physicists’ because if you can comprehend black holes and dark matter or quarks and neutrinos, then, surely, you can comprehend neurons firing pain throughout your body, or should that be misfiring? If physicists do understand just what pain sufferers are going through, on a day-to-day basis, then, they will be members of a very small club indeed. for, it seems beyond the understanding of many in the medical profession.

I have been suffering from constant cronic-pain for some 18 years now, and, bit by bit, it seems to take just that little bit more of me. The most recent acquisition has been my mind.

Sometime back, and as a result of cronic-pain, I developed depression followed by ‘jerks’, you’ve all had them, you know, you are sitting watching your favourite show, when, out of nowhere, you arm shoots out or you kick the coffee table for no reason, well I developed a more severe form of the same. It was quite amusing at times and most frustrating at others; they are called Myoclonic-jerks.

Sometimes, Myoclonic-jerks become something of a self-fulfilling prophecy, the more you try not to focus on them the worse they become. In my case, they led to ‘seizure’ like episodes which, eventually, led to a week in hospital, so high on medication that I was bouncing off the walls!!!

Now, Just to be clear, I am not seeking your sympathy, far from it, there are many people who wish they had my problems! No! i’m not seeking your sympathy, I merely seek your understanding!

Imagine you have a tooth abses, the pain is all-encompassing, it’s shooting through your face, into your head and through your neck. Now imagine that pain, running, like Usain Bolt, down your body and through your legs… now smile!

‘Chin-up!’, ‘you look as though you have the weight of the World on your shoulders!’ ‘never mind, things can only get better!’

Things can only get better, um! today, I may well agree! Tomorrow? Well, we’ll see!

JSB

PAINFUL TRUTHS (UPDATE)


Since posting this blog and asking the question ‘What would you do’? I have decided to go ahead with the operation to fuse my spine and decompress some trapped nerves.

I am under no illusion for a complete cure of my ills but there is now hope: a chance of experiencing less pain in my legs; a chance, in all honesty, I  feel I have to take!

Big thanks to all for the emails and kind messages, all truly appreciated, Thank you!

It’s now a waiting game, I would very much like to get it done asap but I fully accept that there are many people worse-off than me… I have waited this long I can wait a little longer!

———————

Pain is a pain, we all know that; I know that as an irrefutable fact.

I get nervous when writing about myself; about ‘cronic-pain’ and depression, Myoclonic-jerks and falls, its personal… very personal and you can’t be sure who the audience is, who am I trying to reach; are you interested in the trials of life of a middle-aged, slightly shy male?

Pain is a pain, we all know that! It’s said that all of us will suffer back-pain sometime in our lives; if you haven’t had it yet then you’ve probably got it to come. Our hope is, that, it comes and goes in the blink of an eye, the truth is, when pain comes, it will linger for sometime and cause lost moments of living not to mention days off work.

Pain is a pain, we all know that! It’s not a pleasant thought, but, take heart in the knowledge that you may never have another episode again in your life! Unfortunately some will have repeat episodes which could go on to become cronic-pain.

Pain is a pain, In my case, it started with neck-pain and sotmach-pain, followed a month or two later,  with back-pain. That was about 18 years ago and little has changed, despite medical interventions, and, so-called, cures. Little has changed, except my state of mind!

I’ve now been offered a choice: nerve-block jabs in the spine, which was less than successful on the 3 previous occasions; spinal fusion to ‘help the pain in the leg’ or accept that today is the best it will ever be!

I had an operation before, with high hopes of success, it failed!

Pain is a pain, we all know that; 3 years ago, I was sent to a consultant regarding issues in the thoracic area… ‘It’s muscular, but, I will send you for a scan because your GP has asked for one!’ So I go for a an MRI and await the results. Some two years later and yet another consultant, looking into an unrelated issue, tells me the results. It turns out the first consultant hadn’t reviewed the scan; the very same consultant now offering, yet another, operation???

Pain is a pain, we all know that! But how far do you go to get rid of it?

JSB

CALIFORNVACATION


The holiday period comes around far too quickly for my liking. Don’t get me wrong, I don’t dislike holiday periods, how could I, there’s nothing better than having the ankle-biters off school, being bored for weeks on end. No! I don’t dislike holiday periods, I just can’t afford them!

For many years, we would spend our holidays alternating between Wales and Norfolk, my two favourite places in the whole World. One year, we decided to have a change.

We thought long and hard about where we should go, we wanted somewhere different. Having thrown-out the idea of Spain and the Mediterranean, we decided to take the kids to… CALIFORNIA!!!

Having forked-out a small fortune for this holiday, all too quickly departure day was upon us. Four kids, two adults and three wardrobes full of clothes, or at least, that’s what it felt like.

I didn’t think they would let us on with all this baggage… but they did!

We sat in awe, as the jets flew over-head, at the end of our journey, as we awaited our transport to the holiday centre.

‘Dad!’ ‘This place looks like Great Yarmouth’, my daughter pipes-up, ‘Don’t be daft Amy!’ ‘This is ‘California!!!’…

‘Great Yarmouth is 3 miles away!’

For the record, we all had a great time! 😉

JSB

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I’VE NEVER SEEN THE BEACH AT ABERAVON


Growing-up in the Valleys of south Wales in the 1960-70s, it was not the norm to go off on holidays. True, there was always the ‘fortnight shut-down’ at the steelworks and at the collieries; I can hear people shouting up the garden… “get your washing in Mrs Blackmore… the orange cloud is coming!”

The fortnight ‘shut-down’ at Ebbw Vale steelworks referred to the shut-down of just about the whole plant and a time when essential maintenance was carried-out to, among other things, the Bessemer converters; the furnaces which gave people driving through the valley the thought that they were entering the bowels of hell. After cleaning the furnaces they would be fired-up and an orange cloud would hang over the valley, a lot of it would find its way onto any unsuspecting washing-line that happened to have washing on it at the time. In a jealous fit of rage, the river Ebbw would deposit even more tar on to the rocks that we, as kids, would use as stepping-stones. The colour orange was something of a defining characteristic of my home town, if not the sky then the river.
As I was saying, it was not the norm to have holidays away, it was more likely that you would have day trips out to the seaside or to Bristol Zoo, trips put on by the churches and chapels and the pubs and clubs; if your dad was a member of one of the workingmens clubs, then, the children would get an envelope of money to take with them and use on the fair or to get some sweets. Egg, cheese and ham sandwiches were the norm in our house, that and flasks of tea.
I have many fond memories of those trips; trips to the Gower or Porthcawl and Barry Island (Yes! I know! that’s where Gavin and Stacey was filmed!) to Western super-mere and Bristol Zoo. I’ve seen them all and had great fun at all of them, yet, every time we went to Aberavon the only thing we would see was the bus… and the wheel of the bus if you needed the loo!
You see, I have never seen the beach at Aberavon, every time we would go to Aberavon the heavens would open, and, as if getting us back for polluting the sky with orange clouds, it would not stop raining until we hit the heads of the valleys road on the way home to Cwm. Aberavon rain is in a category of its own, rarely have I seen rain that comes close to it, it’s a big droplet, cold… very cold, eye closing, blustery wetness. In these conditions the inside of the bus and a view of the car park through the windows, was ALL we would see. This wasn’t a one-off either, this was every time I have EVER been to Aberavon, I have NEVER seen the beach at Aberavon.
Aberavon beach is three miles long situated in Swansea Bay, popular with surfers due to the large breakers along the shore… or so I’m told!
jsb